Has it been 2 months?
I am back to college at 43 while taking care of a family and running a business. Blogging has seemed to be put to the side for a minute.
This week my hubs went to his homeland of Ireland to visit family. I am single parenting for 10 days and let me tell you I have never missed him more!
It’s been a long week with my 13 year old autistic epileptic lung child! Medical PTSD and loneliness did Conjure up this week. One lesson learned: Just like step 4, never read IEP goals alone. You need someone with you to balance out the negative and put things into perspective.
He requires so much attention from me that it has been impossible to study. By the time I get him to bed I am so tired I pass out with him. He loves taking long baths but needs constant supervision in the bathroom. He cannot dress himself independently and eating…whatever! This week has me contemplating quitting everything to stay home with him just to get him closer to becoming an independent productive adult. For Christ sake, he has hit puberty and still pulls his pants off in public because the snow made his pants wet.
I’m not complaining about taking care of my son. I love being with him. We have amazing moments of laughter and sharing so much love that I actually want to live forever with him.
What hurts the most is the loneliness. He has no friends coming by to hang out. My friends or family are not breaking the door down to visit with their kids. This week has brought that to light for me, yet again. I love being around my friends and their kids, but they don’t love being around me when I am with my kid. #TruthBomb
How do I move forward? I have no clue. The summer is approaching and he will miss his Special Olympics friends and Special Recreation Day Camp for the 2nd year in a row because he is on Oxygen.
I need ideas for the summer. I need places to be and people to see. He needs friends outside of mom and dad. I need to see him engaging with other people, learning to behave appropriately and enjoying it.
We could go bowling every day and meet the elderly team we met last year. They loved him, even named their bowling team after him, “One Stinking pin!” and “Oh! Coconuts!” Those are Johnny’s ‘good words’. The originals were “One F$%^ing Pin” and “Oh! F%^$”. It took almost a year to replace those words! (I guess I can’t blame parents for keeping their kids away from mine!)
In the meantime, I will continue to ask around, reach out and ask for help in a network of people I have never met on social media. Hopefully, something will fall into our laps. Part of me knows whatever happens is meant to be. We always seem to be in the right place at the right time. #Blessed